Hi, my name is [First Name] [Last Name], a member of a parent and family support organization based in New York.

[personal message]

We support the intention behind S929 to strengthen protections for personal health information. However, we are very concerned that the bill’s current language may unintentionally include parent groups, peer networks, and family support organizations under its scope—despite the fact that we are not healthcare providers.

Our group helps families navigate challenges like pregnancy, childcare, postpartum health, and mental wellness. In doing so, we may share or collect incidental health-related information—not as part of a clinical process, but as part of mutual support. Under the current definitions in S929, these basic peer interactions could be subject to complex compliance rules—and expose us to high penalties, even for good-faith efforts to help families.

We respectfully urge you to consider the following changes:

• Include clear exemptions or safe harbors for parent groups and family support networks,
• Clarify what types of informal support or incidental health info are not intended to be regulated,
• Ensure penalties are proportionate, and that enforcement focuses on education and intent.

Thank you for your leadership on protecting personal data, and for taking the time to consider the impact this legislation could have on the communities that families trust and rely on every day.

Sincerely,
[First Name] [Last Name]
[Email]